Catherine’s story: Living with breast cancer through a pandemic

Catherine was diagnosed with breast cancer during the Coronavirus pandemic in May 2020. This is her story…

Catherine had felt a lump in her breast that appeared very suddenly. She booked an appointment with her GP who then made an emergency referral to the hospital. Catherine was then scanned for Breast Cancer. The mammogram showed cancer had spread to the lymph nodes in her armpit.

When asked how Catherine felt about the initial diagnosis, she said: “Absolute terror. At that point, I didn’t know anyone who had survived cancer. I was desperately worried about my family. I initially cried lots because I worried about not being with my children as they grew up. I was concerned about what to do about my job. I was also quite angry because I had always been healthy and careful about diet and exercise. It came out as a rage about the unfairness of life!”

Catherine was not alone in these feelings. Her husband and children were deeply worried for her along with Catherine’s sister and parents, who live far away, with her sister in London and parents in France. It was a very lonely and isolating time for her.

Catherine only saw her sister and parents once over the year, with them visiting in the garden and Catherine sitting inside her kitchen. Not being able to see family during an exceptionally worrying time, not knowing whether the cancer would worsen, made the process a lonely one for Catherine.

She said: “I wasn’t able to see any friends either. Thank goodness for Facetime and Zoom! When the children went back to school in September I had to isolate myself from them in the run up to my surgery. We decided as a family that it would be better that way than them continuing to stay off school. The risk of Covid also made it very worrying every time I went out for a walk or to an appointment at the Doctor; I felt increasingly at risk.”

Big C has played a key element in Catherine feeling less alone. Big C’s Senior Cancer Information Clinical Nurse Specialist, called Catherine every week to answer her questions and concerns.

“The Big C specialist talked me through every stage of the treatment and calmed my anxieties in the most wonderful way. She made it clear that there was no question or fear too silly or embarrassing to ask.”

CATHERINE, SERVICE USER

Catherine said: “I could never have done it without her. They explained all the benefits very clearly so I knew exactly what I could claim and how. Then when I went in for my surgery I was given a leaflet about exercise. Big C’s Health Education Officer organised for me to join a mindfulness yoga group. It was amazing, Nikki was a fantastic teacher! Also, I received a beautiful hamper in the hospital full of carefully thought through items as well as little care packages delivered to my door. The best was the 5kg bag of pasta during the lockdown!”

Do you need support?

Cancer affects us all in many different ways; we know it can be a difficult time. Whether you’d like to talk in confidence, get practical support or have a calm space away, we can help.

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Looking for information?

When diagnosed with cancer the amount of information you have to take in can sometimes be overwhelming. Learning new words and meanings, finding out about a diagnosis and what the future may look like can be challenging.

We’re here to help you work through all of this, with clear information and a wide range of resources.

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Janice’s story

Janice is one of our dedicated volunteers at the King’s Lynn Support Centre, and having been involved for a while now, wanted to share her volunteer story…

Janice is a fantastic part of the Big C family. Her daughter, Tonia is the Charitable Operations Area Manager at our King’s Lynn Support Centre.

In 2014, Janice, her then boyfriend, Eddie and her daughter Tonia began attending Slimming World. It wasn’t until Eddie started losing a lot of weight very quickly that they began to notice something might be out of the ordinary. Shortly afterwards, he began having swallowing difficulties.

After a doctor’s appointment, Eddie was sent to have an endoscopic procedure and then biopsies and on that same day, he was diagnosed with Oesophageal Cancer. This outcome hadn’t even crossed Eddie or Janice’s minds and was a huge shock to them all.  

Following his diagnosis, Tonia brought Eddie and Janice to the Norwich Support Centre in the grounds of the Norfolk and Norwich Hospital so they could access advice, information and support.  

It was discussed whether Eddie could have surgery, but unfortunately, this could not go ahead, so he began chemotherapy to shrink the tumour. His consultant gave him the prognosis that without chemotherapy, he would be able to live for another 6 months, with the chemotherapy, he could live for another 9 – 18 months.

During his treatment, Eddie had a stent fitted to help him continue eating as normally as possible, however, he lost about 7 stone. This was the thing that struck Janice and one of the hardest realisations. Eddie was a man who loved his food and Janice loved to cook for him so it was hard on them both.

Service users, Janie and Eddie

In March, Eddie had his birthday and at the same time, he was admitted to hospital to have another stent fitted. Being in hospital helped with his pain management but he really just wanted to be at home.

Eddie proposed to Janice that summer and in November 2014, they were married. They had a lovely day but Eddie only managed to stay until 7pm.

During Eddie’s treatment period, Janice recalls attending Big C support sessions in the Kings Lynn Centre, including the weekly men’s group, drop-in sessions, tea and cake with other centre visitors as well as seeing a welfare advisor and having some helpful relaxation sessions. As Eddie’s carer, Janice attended some complementary therapies, chatted with people in a similar situation and the team helped her acquire things that she needed to look after Eddie at home which made such a difference.

Eddie passed away in May 2015, 9 months after his initial diagnosis. Janice recalls him being frightened but he was a strong person, he never lost his hope.

“Big C are a big help to people and put peoples mind at ease, they put you in the right place for what you need. Some medical professionals spoke to me like I knew it all already, I didn’t know which way to turn. I was supported by Big C and it made a big difference. To have somebody care and understand what you do need, is a big thing. Big C was that. They helped us all the way through.”

Janice, big c volunteer

Following Janice’s experience with Big C, she wanted to get involved by volunteering. She know helps at Big C’s King’s Lynn Centre talking to people that visit the Centre, making them feel at home and offering a cup of tea.

“The understanding, help and compassion Big C gave was marvellous. I still volunteer and help with fundraising events. If it’s going to help, that’s why I do it.”

Volunteer Janice, sitting in a green comfy chair at the Royal Norfolk Show

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Living with dyslexia

This Dyslexia Awareness Week, Dr Chris Bushby has spoken to Norfolk Director Magazine on his experience of living with Dyslexia.

Having been Chief Executive of two leading organisations in the region over 25 years, a Chair of several Boards and with three honorary doctorates, certain assumptions are made of you. But many will have no idea that some days I can find it difficult even to write my signature.

I was fortunate to have been diagnosed as dyslexic when I was eight or nine. I was born at Colchester Hospital and adopted at birth, by a wonderful couple. My father was Professor of Music at the Royal College of Music in London and my mother was in teaching. My parents had a biological son, my brother Peter, who is eight years older than me and also went on to adopt my two sisters.

I attended Bedfield Primary School, which only had two classes. At that time dyslexia wasn’t recognised in the Suffolk education system and I was considered ‘backward’. My parents recognised that there was something more complex about the way I learnt and paid for me to undergo diagnostic testing in London. With a confirmed diagnosis, they also arranged for some appropriate teaching to help.

At senior school I also benefitted from the support of four fantastic teachers who recognised my abilities, Miss Arnold in English particularly. I finished school at Debenham High as Head Prefect, House Captain and Head Librarian, which is ironic as I have hardly ever read a book!

Undeniably there have been barriers. As part of the Duke of Edinburgh Award Scheme I undertook a placement at a veterinary practice in Framlingham. I loved it and ended up working there on Saturdays for the next three years. They thought I had promise to become a vet, but because of the academic qualifications and lack of recognition of dyslexia at that time, it wasn’t a possibility.

Instead I spent three years in the army in the Coldstream Guards. I was privileged to be awarded as top student on graduation which enabled a route into university on my return. By this time there was a greater understanding of dyslexia and when I completed my MBA I was allowed to bring in my personal assistant at the Suffolk Agricultural Association to type my answers.

I am a black belt, 3rd Dan in Judo. This practise and resulting achievements, competing on a national and international stage, helped my personal development and an understanding of what I am capable of. For example, I couldn’t write or read well, I see words as shapes, but I could think and speak. I was the only pupil at the time to have been awarded 20/20 in my oral English exam. My speech was on ferreting and I took in my pet ferret. The external examiner had to hold him while I did my oral exam and didn’t take any notes! Like a lot of dyslexics I have a good memory and I am also good at problem solving and seeing the big picture. This really helps as a CEO and Chair.

“I urge those with dyslexia and those around them never to consider it a disadvantage and to have self-belief. You develop your own personal strategies to cope and play to your strengths.”

DR CHRIS BUSHBY, CHIEF EXECUTIVE AT BIG C

Technology has been a game changer. I use dictation software on my phone, spell checking and find models and other visual tools, such as PowerPoint very helpful. I enjoy Radio 4 for keeping up to date with current affairs and news.

As a business leader, it is important to build a team around you with the skills to help you succeed. All work places today should have a culture where everyone has an awareness of learning difficulties and the challenges they may present. Those with learning differences should be fully supported with additional help and assistive technology as required. Simple changes can make a big difference, such as changing communication methods and using audio more frequently. Everyone should be given a chance and I am pleased to say this is certainly the case at Big C. The support given should never be patronising, diversity within teams is extremely beneficial to an organisation and can bring a different dimension to thinking and creativity.

Thankfully today, there is a lot of help available to diagnose dyslexia and support students through the education system and employees in the workplace. A few of these organisations are signposted below. Some also offer support to employers. It’s a good idea to speak to your child’s school, or to your GP in the first instance.

For further support, please contact the following organisations

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